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- Dr. Linda Traylor of The
Binding Site gave an excellent
presentation, both orally and with Power
Point slides, on the subject of serum free light chains.
Our members asked Dr. Traylor many detailed questions.
- Generic
PET Scan justification letter from Dr. Durie and perhaps
the Centers for Medicare
and Medicaid Services (CMS) Decision
Memo for Positron Emission Tomography (FDG) for Solid
Tumors (CAG-00181R) might be seful to patients having trouble
getting their insurance company to approve a PET Scan. Only
page 29 (for Myeloma) and Appendix A on page 30 are all that
is needed from this second reference since it is such a large
document in total.
- The Leukemia & Lymphoma
Society's Team In Training® is the world's largest endurance
sports training program. The program provides training to
run or walk marathons and half marathons or participate in
triathlons and century (100-mile) bike rides. Since 1988,
more than 360,000 volunteer participants have helped raise
more than $850 million. Click
hre for more information.
- Dr. Charles (Chuck) Wakefield
is the Director of the Advanced Education in General Dentistry
Program at the Baylor College of Dentistry (BCD) in Dallas.
Dr. Wakefield also happens to have multiple myeloma and is
a patient of Dr. Brian Berryman.
- Dr. Wakefield has written
the professional protocol for dental care for those taking
oral and IV bisphosphonates (such as Aredia and Zometa),
as he recognizes that the problem of Osteonecrosis of the
Jaw (ONJ) is a very serious problem for all of us with myeloma.
Click here for Dr. Wakefield’s article.
- This
is a four-part series of articles on bone marrow and stem
cell transplantation. The series will prepare you to ask
your transplant team meaningful questions and help you to
understand the answers. This article provides an overview
of bone marrow and stem cell transplantation and explains
the differences between autologous and allogeneic transplants.
This four-part series is written by Edward Agura, MD, an advisory
panel member for the PLWC Editorial Board. Dr. Agura is Director
of the Program in Blood and Marrow Transplant at Baylor University
Medical Center in Dallas, TX.
- Testing
History Template: Have you wondered which
of your laboratory test results to track or how best to track
them? Wonder no more. Developed by our own Dennis
McClure, these templates will help you organize and record
your test results that you should track as a Myeloma Survivor.
There are two types of tools:
1. Automated
MS-Excel Spreadsheet Tool - Contains automated
formulas and automatically creates trend line charts
for some of the more important tests. Trends are usually
more relevant than individual test results. The "Directions
For Use" should answer most questions and provides
suggestions. All versions of the MS-Excel tools can
be personalized and customized (see "Directions
For Use") before printing to fit each patient better
(To open/save these to
your machine, please right click on each link and do
a "Save Target As". Once saved on your machine,
you can open it using Word or Excel)
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2.
Manual Use Forms - Don't have a computer or
know how to use MS-Excel? Have a family member, friend,
or support group member print out a supply of Manual
Use Forms to fill in with pencil or pen. While the MS-Excel
version of this manual use form can be personalized
and customized before printing to fit each patient better,
the PDF forms can not be modified.
(To
open/save these to your machine, please right click
on each link and do a "Save Target As". Once
saved on your machine, you can open it using Excel or
PDF Reader)
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If you encounter any problem
with downloading these files, please e-mail Yelak.
If you have any problems with the template itself and/or have
any questions related to the template, please e-mail Dennis.
- BANK
ON A CURE™ : During the last decade brilliant scientists mapped the
human genome providing a bridge to understanding human DNA.
During the first decade of this century the International
Myeloma Foundation will cross that bridge by pioneering the
first global Myeloma-specific DNA bank in history:
Bank On A Cure™
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